Down Syndrome Advocate for my daughter, and family. With support,knowledge,training and allot of enthusiam,I decided to share our journey with SIMONE. Our motto is(Supporting Individual Milestones One Day At A Time).
SIMONE

Monday, August 27, 2012
Sunday, August 26, 2012
Less than 24 hours!!~
I have less than 24 hours, before I send Simone to Pre-k..... oh the anxiety,, I cant sleep. So I have packed and repacked her Backpack, added her name tags to everything that I possibly could. I'm not sure who will be more excited her or me. Knowing Miss Simone she will probably hug all the students and teachers in her class and start running things. If you know Simone by now she is a runner and can move very fast>!! All the excitement and new learning experiences..is allot to take in.
But I know she is able. she loves to dance, sing, read books and say Noah did it!~ Poor big brother is blamed for everything right now,,LOL!~
well I will be posting pictures tomorrow....... stay tuned...............
But I know she is able. she loves to dance, sing, read books and say Noah did it!~ Poor big brother is blamed for everything right now,,LOL!~
well I will be posting pictures tomorrow....... stay tuned...............
Wednesday, August 22, 2012
Five days till school~~
On your mark- set- go-!~ It is five days till Simone attends school, and after allot of prayer, she was moved from the afternoon class, to the morning session. This is great news since I was very uneasy about her riding a school bus.
Friday, August 17, 2012
ten days to go!~
Okay , Simone has ten days before she goes off to school!~ well technically its not college, but (pre) pre-k.
The anxiety is on high alert for me,,, I'm not sure how she is going to be with the change, in daycare and now also going to school,..but this busing is really bothering me, To bus or not to bus,,, I am not feeling easy about her catching a bus from daycare to school, then school back to daycare,,, there is too much time where she is in transit, and I am not too sure about this,! what are your thoughts, any suggestions??
The anxiety is on high alert for me,,, I'm not sure how she is going to be with the change, in daycare and now also going to school,..but this busing is really bothering me, To bus or not to bus,,, I am not feeling easy about her catching a bus from daycare to school, then school back to daycare,,, there is too much time where she is in transit, and I am not too sure about this,! what are your thoughts, any suggestions??
Wednesday, August 8, 2012
18 Days before Simone starts preschool!~
August 27th is the first day of school for many students in the metroplex and it will be the first day for Simone attending preschool,
Yes she is three, but now she is too old for ECI which goes from age 0-3 years of age, so now off to pre-k. I have elected to go the public school route.
Since April I have met with several school officials who assessed, tested, informed and made decisions on Simone's future education. I feel she will have a positive experience, even though her class is self contained... as a matter of fact she will be the youngest at the school and will only socialize with prek, and kindergartners during recess.
Begin the count down today: Aug 8th, **DAY 19th*****
__side reading:
Federal law reflects this understanding by requiring that preschool children with special needs (ages 3 through 5) be provided a free and appropriate public education in the least restrictive environment. Research shows many children will benefit from inclusive preschool placements where they can learn with and from their non-disabled peers. Four reviews of the literature undertaken since 1980 indicate that children with special needs placed in inclusive settings make at least as much progress on standardized measures of cognitive, language, motor, and social development as children in self-contained special education settings. According to researchers, inclusive placements afford preschool children with special needs learning opportunities that they will not have in a non-inclusive setting. In addition, some researchers feel that placement in non-special education settings is simply the right and ethical thing to do for these children and their families.
Yes she is three, but now she is too old for ECI which goes from age 0-3 years of age, so now off to pre-k. I have elected to go the public school route.
Since April I have met with several school officials who assessed, tested, informed and made decisions on Simone's future education. I feel she will have a positive experience, even though her class is self contained... as a matter of fact she will be the youngest at the school and will only socialize with prek, and kindergartners during recess.
Begin the count down today: Aug 8th, **DAY 19th*****
__side reading:
Federal law reflects this understanding by requiring that preschool children with special needs (ages 3 through 5) be provided a free and appropriate public education in the least restrictive environment. Research shows many children will benefit from inclusive preschool placements where they can learn with and from their non-disabled peers. Four reviews of the literature undertaken since 1980 indicate that children with special needs placed in inclusive settings make at least as much progress on standardized measures of cognitive, language, motor, and social development as children in self-contained special education settings. According to researchers, inclusive placements afford preschool children with special needs learning opportunities that they will not have in a non-inclusive setting. In addition, some researchers feel that placement in non-special education settings is simply the right and ethical thing to do for these children and their families.
Wednesday, August 1, 2012
My Way
In my own way and at my own Pace..! (This is what I like to tell others who may want to point out what Simone is doing and not!.. All children born with DS will have developmental delays, it is hard to determine at birth what level may need more help, but Simone will learn new skills, and tasks.It may take a little longer but with each task broken out into smaller ones Simone will meet her developmental milestones:
See the chart:
GROSS MOTOR
See the chart:
Developmental Milestones
Milestone Range for children with D.S Typical range Simone
GROSS MOTOR
Sits Alone 6 - 30 Months 5 - 9 Months Physical therapy helped me before my 1st bday
Crawls 8 - 22 Months 6 - 12 Months I began around 8 months
Stands 1 - 3.25 Years 8 - 17 Months 1.5 years old
Walks Alone 1 - 4 Years 9 - 18 Months 2 years old *falls down I like to move real fast!
LANGUAGE
First Word 1 - 4 Years 1 - 3 Years 2 years old and still a work in progress.
Two-Word Phrases 2 - 7.5 Years 15 - 32 Months my speech is not clear, just a few words, but I'm learning
PERSONAL/SOCIAL
Responsive Smile 1.5 - 5 Months 1 - 3 Months 3 months
Finger Feeds 10 - 24 Months 7 - 14 Months 2 years old
Drinks From Cup Unassisted
12 - 32 Months 9 - 17 Months 2 .5 years old
Uses Spoon 13 - 39 Months 12 - 20 Months 1.5 years old
Bowel Control 2 -7 Years 16 -42 Months definitely a work in progress~~at my own pace
Dresses Self 3.5 -8.5 Years 3.25 - 5 Years not yet….but I can take my shoes and pull ups off..
Opportunity
Mama exhorted her children at every opportunity to 'jump at the sun.' We might not land on the sun, but at least we would get off the ground.
Zora Neale Hurston
This quote inspired me to recall all the opportunities I want Simone to have in life, just like the rest of us. I am excited at her milestones she continues to make daily. I noticed at our recent family reunion in New Orleans that Simone loves to dance. She did a great job and has some moves.. LOL.!
She was the life of the party and since she was the first one to start dancing , it helped all the "grown folks get up and dance too.!~
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